Patient experiences in the management of epilepsy in Iceland

Take part in the study

Do you have epilepsy, or are you a caregiver for someone with epilepsy? You can take part in the study by completing a survey about your experiences of epilepsy diagnosis and treatment in Iceland.

At the end of the survey, you can also volunteer for a follow-up interview to share more about your experiences. Taking part in the interview is optional.

Take part in the study

About the project

Epilepsy is one of the most common neurological disorders worldwide and can have a significant impact on health and quality of life. Appropriate medication can control seizures in around 70% of patients, but a range of barriers may affect access to diagnosis and treatment.

In Iceland, where people live can affect access to specialised healthcare. Long distances, challenging weather conditions and limited public transport can make it particularly difficult for people in rural areas to access specialist services.

This study is part of the AEGEUS project and aims to identify key challenges faced by people with epilepsy and their caregivers. These include delays in diagnosis, access to appropriate diagnostic equipment and other barriers encountered during diagnosis and treatment.

The study will be conducted in two phases. Participants will first complete a survey and will then have the option of taking part in a follow-up interview.

Participants will also be introduced to a new EEG-ultrasound (EEG-US) device and its potential advantages over conventional diagnostic methods. The study will explore their views on the technology, including whether they would be willing to use it and whether they believe it could improve the diagnosis and overall management of epilepsy.

Researchers

Collaborators